Leilani

leilani

May I introduce you to beautiful Leilani. She is 12 years old and was born with a genetic defect called cri-du-chat-syndrome. It is a rare genetic disorder due to a missing part (deletion) of chromosome 5. Its name is a French term (cat-cry or call of the cat) referring to the characteristic cat-like cry of affected children. I know her already for 5 years and she really touches my heart with her uncompromising way to show her feelings. She is pure and innocent. She is blessed with a loving family who always stand by her side.

One thought on “Leilani

  1. Hello!
    Thankyou for posting Leilani!!
    Congratulations to her & her Family!!!

    …i have a friend in Mexico, his son is as beautiful as Leilani; i’m surprised that both don’t really have mycrocephalia, the difference is that my friend’s son does not have a diagnosis …but has a family that is also eager to be there with their kid, i’m just afraid that they’ll not have all the multi-specialty team’s recommendations, so i’ll be grateful for yours’ …may Jehovah bless your kindness!

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